Log in

going on 3 weeks... - "DJ's saying something nasty" [entries|archive|friends|userinfo]

[ userinfo | livejournal userinfo ]
[ archive | journal archive ]

going on 3 weeks... [May. 28th, 2012|12:14 pm]
[mood |sadsad]

I am experiencing a horrible R.A flare up that won't go away no matter how many steroids I take for it. This is the worst my R.A has ever been. I had a Steroid Shot to the hip last week and not relief I am now on a steroid burst and no relief. I am supposed to start infusion drugs but having major issues with the insurance company covering it so I doubt this will happen. I know my disease is getting worse but it's too expensive to maintain and if theres no money to pay for it I just have to suffer. I have looked into finical assistance programs but we miss the cut off by $40 a month, which I find awful because we are paying tripple the amount on hospital bills each month. I am losing function of my fingers, I have acquired some nerve damage from the R.A in my ring and pinky fingers. I am not really certain of what to do at this point I will know more tomorrow I hope when I call and find out how much my insurance will pay on the Infusions. They will range anywhere from $20,000 to $6,000 a month but I honestly don't know how much will be covered and if it will even be an option. I can't afford biologics $300 a month after insurance they are about $2,000 a month without insurance. July will make 3 years of my R.A diagnosis I was told then without heavy treatments I would be in a wheel chair within 5 years. I am not in a wheel chair yet but the closer I get to that 5 year mark and worse things have become the more I wonder how true this statement will become. I was also given the diagnosis of PCOS recently and was told by the dermatologist without treatment I will eventually be bald and that Rogan won't help because its a hormonal in-balance. So I am really hoping things change because I really don't want to be bald and in a wheel chair at the age of 28 (5 years from now). On a positive note, me and Mat are coming up on are 2 year Wedding Anniversary and 6 years that we have been together.